Volunteering support for the MND Association

One of the benefits of running your own firm, is that you have full control over how you spend your time.  Over the last six months, as well as working for our super clients and running Legacy Law Limited, I have also been volunteering for the MND Association.  This organisation is focused on improving access to care, research and campaigning for people affected by motor neurone disease. This is a charity close to my heart for personal reasons.

I have found it truly lovely to be able to lend my professional expertise to the revision and amendment of the care information produced by the charity.  This is aimed at those with MND and those affected by MND.

The MND Association has now launched their new ‘End of Life Guide’.  This represents a huge amount of work by the team at the MND Association.  I am pleased and proud to have been able to support the revisions and evolution of this amazing source of information and support.

MND Association research and funding

It may shock you to learn that the UK Government’s funding for targeted MND research stand at less than £5m per year.  Research into the causes and potential treatment for MND has progressed.  Current trials are offering real promise.  But this progress is largely dependent on sufficient levels of investment.

And research costs money.  Currently funding for MND research from charities outstrips that from government.  Without government support this vital progress is in danger of halting.

Some scientists believe that, within a few years (and with sufficient funding) MND research could halt the progress of the disease in some people.  This is amazing.  This means keeping families together and stopping pain and suffering.

If you have a few minutes, please sign the petition.

If you need help

I am a solicitor and specialise in documentation for end of life planning.  If you would like further information, please contact me on 0118 40 50 131 or email me.  Alternatively get in touch via our contact page.